Tag: Amyotrophic lateral sclerosis
New: Simplified patient registration for the ALS app, now available internationally as well
We have revamped the registration process for patients on the APST website. The goal is to simplify registration, particularly for patients outside Germany, and to improve international access to the ALS app. The new registration process will go live on Tuesday, October 13, 2026. What’s New? Selecting a Country of Residence At the beginning of…
New Assistive Device Module in the APST Care Portal
On Monday, October 12, 2026, the new assistive device module is scheduled to go live on the APST Care Portal. The module has been completely redesigned. The goal of the redesign is to improve user-friendliness, simplify interaction with the supply processes, and provide a clearer overview of the current status of each assistive device process.…
New in the ALS app: personalized care recommendations
In amyotrophic lateral sclerosis (ALS), symptoms and support needs can change over time. That is why it is important to identify necessary medications, assistive devices, or additional treatments as early as possible. The ALS app from APST supports you with personalized care recommendations. How are the dietary recommendations developed? The care recommendations are based on…
ALS App Europe Initiative: Connecting Digital Care and Research Across Europe
On June 23, 2026, the “ALS App Europe Initiative Meeting” will take place in Madrid as part of this year’s European ALS Conference (ENCALS ). This satellite meeting will bring together experts from clinical care, research, and digital medicine to discuss new opportunities for a Europe-wide networked ALS care system. At the heart of the…
The ALS pen – digital precision for ALS research
With the ALS pen, we are presenting a new project for the structured and quantifiable recording of hand motor skills in the course of amyotrophic lateral sclerosis (ALS) for the first time. Our aim is to record motor changes in the hand of people with ALS in a more differentiated and standardized way. To this…
ALS network symposium with APST in Berlin on April 16, 2026
The ALS Network Symposium will take place in Berlin from Wednesday, April 15 to Friday, April 17. Traditionally, the symposium begins on Wednesday evening with an informal get-together. On Thursday, the following topics are planned by APST and Charité – Universitätsmedizin Berlin: – the ALS phenotype biomarker registry with a focus on ALS-OPM classification, NfL…
DMC in ALS
During the course of their disease, around 90% of patients with ALS develop speech or swallowing difficulties – so-called bulbar symptoms. Around a third of all patients already show bulbar symptoms at the onset of ALS. Dextromethorphan/quinidine (DMC) has established itself as an off-label treatment option to alleviate these symptoms in ALS. In a patient…
Together since 2011 – 15 years of APST
2026 is a special year for us: APST is celebrating its 15th anniversary. Since our founding, we have stood for reliable support, dedicated research, and digital services for people with ALS, SMA, and other motor neuron diseases. Thank you for your trust, your loyalty, and the many shared experiences over the past years. We look…
The ALS app at the international ALS symposium in San Diego
On December 4, 2025, the ALS app will be presented at the“ALS App Europe Initiative Meeting” at the International Symposium on ALS/MND in San Diego (USA). The meeting brings together European and American ALS centers, researchers and patient initiatives. You can find out more about the program here: https://symposium.mndassociation.org/programme/satellite-meetings/ The “ALS App Europe Initiative” meeting…
Which ALS outpatient clinics use the OPM classification?
Following our last newsletter on the introduction of the OPM classification in the ALS app, we have received numerous queries: Which ALS outpatient clinics in Germany already use the OPM classification as part of the “NfL study in ALS”? We are pleased to be able to provide you with a transparent overview. ALS outpatient clinics…
