Tag: Amyotrophic lateral sclerosis

Relaunch of the ALS App: Better Features and Faster Technology
Mar 26, 2024
In recent years, the ALS app has become a trusted companion for people with ALS. About 1,000 members of our network use it to track the progression of their disease, assess their prognosis, and participate in care management. With this relaunch, we’re offering faster performance and have improved several features. The latest update to the…
The individual progression of ALS in the ALS app: the new “My progression form” function
Mar 20, 2024
The course of ALS (amyotrophic lateral sclerosis) can be very different and individual. The way in which the symptoms develop is described by the specific progression that is present in each affected person. Two factors are particularly important for an individual assessment of the course of the disease: To be able to better assess the course…
Request an e-prescription, redeem it at your ALS pharmacy via the ALS app, and continue to support ALS research
Feb 22, 2024
The e-prescription is currently being rolled out nationwide. It will replace the “pink paper prescription.” Important: Even with the e-prescription, you can continue to receive your medications from your ALS pharmacy and participate in ALS research. There are two steps to follow. Step 1: Request a printed copy of the e-prescription You will continue to…
Digital care during the coronavirus pandemic: communicating requirements for medical aids and medication online
Apr 7, 2020
The reliable supply of aids and medication is crucial for people with amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases. At the same time, transportation and travel restrictions during the coronavirus pandemic can make it more difficult to provide outpatient care. To ensure outpatient care, Ambulanzpartner offers patients the opportunity to document their care needs…
Patients make intensive use of the online ALSFRS questionnaire – 1,000 scores already recorded
Jul 10, 2018
The 1,000 ALSFRS questionnaire was submitted online via Ambulanzpartner.de last weekend. We are delighted that the online self-assessment of the course of the disease is being used so intensively by patients. The 1,000 ALSFRS score was collected by Bernd König. “Your work is extremely important to me, especially in this situation,” writes Bernd König in…
High satisfaction with edaravone (Radicut) in patients with amyotrophic lateral sclerosis (ALS)
Mar 1, 2018
Edaravone is approved in Japan under the name Radicut and in the USA under the trade name Radicava for the treatment of amyotrophic lateral sclerosis (ALS). Despite the lack of approval for edaravone in Europe, the drug is also available in Germany as a single import (in accordance with Section 73 of the German Medicines…
International publication on the results of platform-based supply management of assistive devices for ALS
Feb 11, 2018
In January 2018, the international journal Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration published the results of a care management program for assistive devices in amyotrophic lateral sclerosis (ALS) via the Ambulanzpartner internet platform. The provision of assistive devices is of central importance in ALS. Despite its socio-medical relevance, the provision of assistive devices in ALS…
What patients think: The patient perspective on physiotherapy, occupational therapy and speech therapy in ALS
Oct 17, 2017
Remedial care is a central component of symptomatic and palliative treatment for amyotrophic lateral sclerosis (ALS). The subjective experience of therapies including physiotherapy, occupational therapy and speech therapy is largely unknown. By surveying recommendations for physiotherapy, occupational therapy and speech therapy, Ambulanzpartner examined the patient perspective on their treatment. We surveyed 256 people with ALS…
Online recording and monitoring of the ALS-FRSr scale via ambulance partners
Sep 5, 2017
The “ALS Functional Rating Scale“(ALS-FRSr) is an internationally established scale for assessing ALS disease severity, which evaluates 12 motor functions (subscales) that are typically impaired in ALS. Since March 2017, we have been offering people with ALS the opportunity to document their individual ALS-FRSr scale online at regular intervals. By repeatedly answering the scale at…
The Ambulance Partner Academy program for 2017 is ready
Mar 13, 2017
In 2017, the Ambulanzpartner Akademie is once again offering exciting seminars for participants in the care network and interested guests. The thematic focus this year is clearly on amyotrophic lateral sclerosis. Since Ambulanzpartner was founded in 2011, over 6,500 people with ALS have been cared for in our network. We would like to share the…