Tag: Amyotrophic lateral sclerosis

Digital care during the coronavirus pandemic: communicating requirements for medical aids and medication online
Apr 7, 2020
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The reliable supply of aids and medication is crucial for people with amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases. At the same time, transportation and travel restrictions during the coronavirus pandemic can make it more difficult to provide outpatient care. To ensure outpatient care, Ambulanzpartner offers patients the opportunity to document their care needs…
Patients make intensive use of the online ALSFRS questionnaire – 1,000 scores already recorded
Jul 10, 2018
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The 1,000 ALSFRS questionnaire was submitted online via Ambulanzpartner.de last weekend. We are delighted that the online self-assessment of the course of the disease is being used so intensively by patients. The 1,000 ALSFRS score was collected by Bernd König. “Your work is extremely important to me, especially in this situation,” writes Bernd König in…
High satisfaction with edaravone (Radicut) in patients with amyotrophic lateral sclerosis (ALS)
Mar 1, 2018
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Edaravone is approved in Japan under the name Radicut and in the USA under the trade name Radicava for the treatment of amyotrophic lateral sclerosis (ALS). Despite the lack of approval for edaravone in Europe, the drug is also available in Germany as a single import (in accordance with Section 73 of the German Medicines…
International publication on the results of platform-based supply management of assistive devices for ALS
Feb 11, 2018
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In January 2018, the international journal Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration published the results of a care management program for assistive devices in amyotrophic lateral sclerosis (ALS) via the Ambulanzpartner internet platform. The provision of assistive devices is of central importance in ALS. Despite its socio-medical relevance, the provision of assistive devices in ALS…
What patients think: The patient perspective on physiotherapy, occupational therapy and speech therapy in ALS
Oct 17, 2017
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Remedial care is a central component of symptomatic and palliative treatment for amyotrophic lateral sclerosis (ALS). The subjective experience of therapies including physiotherapy, occupational therapy and speech therapy is largely unknown. By surveying recommendations for physiotherapy, occupational therapy and speech therapy, Ambulanzpartner examined the patient perspective on their treatment. We surveyed 256 people with ALS…
Online recording and monitoring of the ALS-FRSr scale via ambulance partners
Sep 5, 2017
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The “ALS Functional Rating Scale“(ALS-FRSr) is an internationally established scale for assessing ALS disease severity, which evaluates 12 motor functions (subscales) that are typically impaired in ALS. Since March 2017, we have been offering people with ALS the opportunity to document their individual ALS-FRSr scale online at regular intervals. By repeatedly answering the scale at…
The Ambulance Partner Academy program for 2017 is ready
Mar 13, 2017
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In 2017, the Ambulanzpartner Akademie is once again offering exciting seminars for participants in the care network and interested guests. The thematic focus this year is clearly on amyotrophic lateral sclerosis. Since Ambulanzpartner was founded in 2011, over 6,500 people with ALS have been cared for in our network. We would like to share the…
Research project on care innovations for people with ALS by the Federal Ministry of Education and Research with Ambulanzpartner
Feb 3, 2017
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Ambulanzpartner receives research funding from the Federal Ministry of Education and Research (BMBF) for a project on technical care support for people with amyotrophic lateral sclerosis (ALS). In the ROBINA project, five companies are researching a new type of adaptive human-technology interaction concept together with ambulance partners. The aim of the project is to transfer…
The ALS consultation at Halle University Hospital is a new member of the OutpatientPartner network
Nov 6, 2016
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The special consultation for ALS at the Outpatient Clinic of the Neurological University Hospital Halle (Saale) has been a new partner in the OutpatientPartner network since November 2016. Our network currently consists of 2,300 people with amyotrophic lateral sclerosis (ALS) who are treated at the university hospitals in Berlin, Bochum, Dresden, Hanover, Magdeburg, Jena, Rostock…
AmbulanzPartner Academy with new program for 2016
Mar 13, 2016
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In 2016, the AmbulanzPartner Academy is offering a comprehensive training program on the treatment and care of complex neurological diseases. The program is aimed at care providers, therapists, doctors, patients and their relatives in the APST network. The Academy focuses on the treatment and care of amyotrophic lateral sclerosis, multiple sclerosis, Parkinson’s disease and stroke.…