Tag: Amyotrophic lateral sclerosis

Over 200 people take part in the internet-supported medication supply for ALS
Jan 12, 2014
The internet-supported medication supply for ALS has been very well received. Launched in August 2013, over 200 people with ALS are currently taking part in the module. In addition to an electronic medication plan, the nationwide medication supply in the AmbulanzPartner supply network also offers telephone advice from a specialist pharmacist and free delivery of…
Presentation of the “Empowerment Award for People with ALS”
Dec 12, 2013
On December 8, 2013, the “Empowerment Prize for People with ALS” was awarded to Regine Borchert. The prize recognizes Regine Borchert’s achievements in participating in a clinical trial on patient assessment of physiotherapy measures for ALS. Regine Borchert herself suffers from a variant of ALS. The Empowerment Award emphasizes the importance of patient evaluations in…
European research network uses AmbulanzPartner.de to improve care for people with ALS
Dec 10, 2013
The European research consortium Joint Programs – Neurodegenerative Diseases (JPND) is using the Internet portal AmbulanzPartner.de for the ALS-CarE project. The ALS-CarE joint project aims to improve the care of patients with amyotrophic lateral sclerosis (ALS) in Europe. Institutes and clinics at the universities in Dublin, London, Milan, Leuven, Munich and Berlin are involved in…
University hospitals use AmbulanzPartner in the BMBF research project ‘MND-Net’ for Germany’s largest data resource on the care of patients with ALS
Sep 22, 2013
In a sub-project of the German Network for Motor Neuron Diseases (MND-Net), a joint project of the Federal Ministry of Education and Research (BMBF), AmbulanzPartner is used to collect care data from patients with amyotrophic lateral sclerosis (ALS). The project is being coordinated at Charité – Universitätsmedizin Berlin and is being carried out in cooperation…
Fachzeitschrift Klinische Neurophysiologie – AmbulanzPartner: multiprofessional and internet-supported care management for ALS
Jun 24, 2013
The specialist journal “Klinische Neurophysiologie” is aimed at neurophysiologists, neurologists, neurosurgeons and neurologists in hospitals and practices. In the June 2013 issue (Clin. Neurophysiol. 2013;44:159-166), AmbulanzPartner is described in detail using the example of care for people with amyotrophic lateral sclerosis (ALS).
Online self-assessment of appetite loss in patients with amyotrophic lateral sclerosis (ALS)
Apr 15, 2013
Progress in the Internet of Medicine: For the first time, a scientific study in the INTERACTIVE JOURNAL OF MEDICAL RESEARCH (2013;2) shows that online self-assessment of ALS patients with loss of appetite is possible and useful. For AmbulanzPartner, this is a motivation to further expand the online self-assessment of care for patients.
Positive vote by the Charité ethics committee for research project with OutpatientPartner in the MND network
Mar 7, 2013
Within the Federal Ministry of Education and Research (BMBF) network “MND-NET”, a pilot study on the feasibility of internet-based patient-reported outcomes (PRO) of disease progression, quality of life and communication options for patients with amyotrophic lateral sclerosis (ALS) in Germany (PRO-ALS01 study) is planned. The PRO-ALS01 study is being conducted nationwide at the university hospitals…
AmbulanzPartner supports clinical study on the effects of physiotherapy in amyotrophic lateral sclerosis
Jul 14, 2012
Treatment with physiotherapy, occupational therapy and speech therapy are established and important forms of treatment for amyotrophic lateral sclerosis (ALS). Despite the “routine” use of these therapies, very little medical-scientific information is known about the results and subjective experiences in ALS. So far, only three scientific publications on treatment results with physiotherapy in ALS are…
DER SPIEGEL – Facebook for patients
Mar 14, 2011