Tag: ALS

Bold ideas for the joint design of assistive technology provision
Dec 3, 2019
We would like to thank you for attending the Outpatient Partner Conference for Assistive Technology Providers on November 15, 2019. It was a very interesting conference where we developed ideas together on how we can implement better care for the patients in our network. Here are some impressions of the conference. We will keep you…
New software for the remedies module goes live
Aug 26, 2018
The remedies module that has been running on our internet platform since 2011 has been revised both technically and in terms of content. In terms of content, we have given the new remedies module some modified functions and new overviews. Technically, the new remedies module has been developed using responsive technology so that the content…
Pilot phase of the Ambulanzpartner care research seal completed
Aug 18, 2018
The pilot phase, in which the APST seal was tested on selected care partner websites, began at the start of 2017. The pilot phase showed us that the seal was stable and how often it was clicked on. Our healthcare research seal identifies companies, practices and individuals who participate in research with their patient care…
Patients make intensive use of the online ALSFRS questionnaire – 1,000 scores already recorded
Jul 10, 2018
The 1,000 ALSFRS questionnaire was submitted online via Ambulanzpartner.de last weekend. We are delighted that the online self-assessment of the course of the disease is being used so intensively by patients. The 1,000 ALSFRS score was collected by Bernd König. “Your work is extremely important to me, especially in this situation,” writes Bernd König in…
I DONATE. My data for better care: the outpatient partner register study
Jul 5, 2018
Donate your data for better care with the support of the Outpatient Partner Registry Study. The Outpatient Partner Registry Study collects treatment data and patient self-assessment data in individual modules. By ‘donating’ your data to the registry study, you are helping to improve research into the care of chronic neurological diseases. The Outpatient Partner Registry…
Nominated for the Short List – Award for Health Networkers
Apr 5, 2018
Ambulanzpartner has been shortlisted for this year’s award for healthcare networkers. The six-member jury whittled the 32 submissions down to 13 projects. What the shortlisted projects have in common is that they cover the entire spectrum of analog, digital and hybrid innovations for better networked healthcare. The prize for healthcare networkers is endowed with a…
High satisfaction with edaravone (Radicut) in patients with amyotrophic lateral sclerosis (ALS)
Mar 1, 2018
Edaravone is approved in Japan under the name Radicut and in the USA under the trade name Radicava for the treatment of amyotrophic lateral sclerosis (ALS). Despite the lack of approval for edaravone in Europe, the drug is also available in Germany as a single import (in accordance with Section 73 of the German Medicines…
International publication on the results of platform-based supply management of assistive devices for ALS
Feb 11, 2018
In January 2018, the international journal Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration published the results of a care management program for assistive devices in amyotrophic lateral sclerosis (ALS) via the Ambulanzpartner internet platform. The provision of assistive devices is of central importance in ALS. Despite its socio-medical relevance, the provision of assistive devices in ALS…
Federal Ministry of Education and Research underlines the importance of ambulance partner research project SmartHealthNet
Oct 17, 2017
Today, the Federal Ministry of Education and Research (BMBF) underlines the importance of our SmartHealthNet research project with the article ‘Number of the week’ on its website and a press release. The research project started on 01.07.2017 and is funded by the BMBF. Further information: https://www.bmbf.de
What patients think: The patient perspective on physiotherapy, occupational therapy and speech therapy in ALS
Oct 17, 2017
Remedial care is a central component of symptomatic and palliative treatment for amyotrophic lateral sclerosis (ALS). The subjective experience of therapies including physiotherapy, occupational therapy and speech therapy is largely unknown. By surveying recommendations for physiotherapy, occupational therapy and speech therapy, Ambulanzpartner examined the patient perspective on their treatment. We surveyed 256 people with ALS…