Tag: health services research

  • Bold ideas for the joint design of assistive technology provision

    Bold ideas for the joint design of assistive technology provision

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    We would like to thank you for attending the Outpatient Partner Conference for Assistive Technology Providers on November 15, 2019. It was a very interesting conference where we developed ideas together on how we can implement better care for the patients in our network. Here are some impressions of the conference. We will keep you…

  • Study to record treatment with nusinersen in adults

    Study to record treatment with nusinersen in adults

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    Nusinersen (Spinraza®) is approved for the treatment of 5q-associated spinal muscular atrophy (SMA). For infants and children, nusinersen can halt the progression of the disease and improve muscle function. For adults, no systematic data on treatment with nusinersen are available to date. Scientific treatment documentation is therefore necessary to improve the data situation for adults…

  • Pilot phase of the Ambulanzpartner care research seal completed

    Pilot phase of the Ambulanzpartner care research seal completed

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    The pilot phase, in which the APST seal was tested on selected care partner websites, began at the start of 2017. The pilot phase showed us that the seal was stable and how often it was clicked on. Our healthcare research seal identifies companies, practices and individuals who participate in research with their patient care…

  • I DONATE. My data for better care: the outpatient partner register study

    I DONATE. My data for better care: the outpatient partner register study

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    Donate your data for better care with the support of the Outpatient Partner Registry Study. The Outpatient Partner Registry Study collects treatment data and patient self-assessment data in individual modules. By ‘donating’ your data to the registry study, you are helping to improve research into the care of chronic neurological diseases. The Outpatient Partner Registry…

  • International publication on the results of platform-based supply management of assistive devices for ALS

    International publication on the results of platform-based supply management of assistive devices for ALS

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    In January 2018, the international journal Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration published the results of a care management program for assistive devices in amyotrophic lateral sclerosis (ALS) via the Ambulanzpartner internet platform. The provision of assistive devices is of central importance in ALS. Despite its socio-medical relevance, the provision of assistive devices in ALS…

  • What patients think: The patient perspective on physiotherapy, occupational therapy and speech therapy in ALS

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    Remedial care is a central component of symptomatic and palliative treatment for amyotrophic lateral sclerosis (ALS). The subjective experience of therapies including physiotherapy, occupational therapy and speech therapy is largely unknown. By surveying recommendations for physiotherapy, occupational therapy and speech therapy, Ambulanzpartner examined the patient perspective on their treatment. We surveyed 256 people with ALS…

  • Online recording and monitoring of the ALS-FRSr scale via ambulance partners

    Online recording and monitoring of the ALS-FRSr scale via ambulance partners

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    The “ALS Functional Rating Scale“(ALS-FRSr) is an internationally established scale for assessing ALS disease severity, which evaluates 12 motor functions (subscales) that are typically impaired in ALS. Since March 2017, we have been offering people with ALS the opportunity to document their individual ALS-FRSr scale online at regular intervals. By repeatedly answering the scale at…

  • Premiere for patient reviews of nutritional therapists in the network

    Premiere for patient reviews of nutritional therapists in the network

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    In recent weeks, we have been working on the technical requirements for patient reviews of nutritional therapists (m/f) in our network. Patients can now rate nutritional therapists from whom they have received specialized nutritional care due to a swallowing disorder or unwanted weight loss. There are over 100 nutritional therapists working in the Outpatient Partner…

  • AP care research seal for websites of our network partners

    AP care research seal for websites of our network partners

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    For two years now, Ambulanzpartner has been displaying various online patient reviews in anonymized form on its website. The ratings are based on the Net Promoter Score(NPS). After patients have received care, they can submit a rating in their electronic care file using the NPS. The evaluation process is complex but very binding, as only…

  • The ALS consultation at Halle University Hospital is a new member of the OutpatientPartner network

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    The special consultation for ALS at the Outpatient Clinic of the Neurological University Hospital Halle (Saale) has been a new partner in the OutpatientPartner network since November 2016. Our network currently consists of 2,300 people with amyotrophic lateral sclerosis (ALS) who are treated at the university hospitals in Berlin, Bochum, Dresden, Hanover, Magdeburg, Jena, Rostock…