Total number of participants with SMA since 2011
245
Number of participants with SMA by year (2019–2025)
SMA centers in the supply network
How we support you
With these care and research programs, we support you during the course of your illness.
We are researching this
We research treatment reality and care outcomes through systematic data analysis.
New software for the remedies module goes live
Pilot phase of the Ambulanzpartner care research seal completed
National Action Plan of the National Action Alliance for People with Rare Diseases (NAMSE) recommends AmbulanzPartner as a telemedicine service for rare diseases
As a participant, you will benefit from research findings on innovative therapies and care for people with SMA.
Questions? Please contact us.
Can’t find what you’re looking for? We will be happy to help you!
Dr. Ronja Schiemann
Clinical Research Associate
Felix Kolzarek
Support für SMA-App, Datenmanagement
Barbara Hildebrandt
Case and network management