Total number of participants with SMA since 2011
245
Number of participants with SMA by year (2019–2025)
SMA centers in the care network
How we support you
With these care and research programs, we support you during the course of your illness.
We are researching this
We research treatment reality and care outcomes through systematic data analysis.
Update of the SMA app: new functions and improved user-friendliness
Study on the treatment of people with 5q-SMA with nusinersen in adulthood
Digital care during the coronavirus pandemic: communicating requirements for medical aids and medication online
As a participant, you will benefit from research findings on innovative therapies and care for people with SMA.
Questions? Please contact us.
Can’t find what you’re looking for? We will be happy to help you!
Dr. Ronja Schiemann
Clinical Research Associate
Felix Kolzarek
Support für SMA-App, Datenmanagement
Barbara Hildebrandt
Case and network management
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