Category: News
Redeem your e-prescription in the ALS app at your ALS pharmacy and continue to support ALS research
You can now redeem your e-prescription with your health card via the ALS app at your specialist ALS pharmacy! You can also continue to be supplied via your ALS pharmacy with the e-prescription and take part in ALS research. Have four things ready: Electronic health card. You will find the 6-digit CAN number (“Card Access…
Patient survey on eye control glasses for people with ALS
The patient survey on eye control glasses is a nationwide, systematic survey of patients with amyotrophic lateral sclerosis (ALS). The aim of the survey is to gain important insights into expectations of the eye-control glasses as well as experiences and satisfaction following treatment with the innovative aid. Drive the wheelchair safely with eye control glasses…
ALS Pharmacy Program Expands Its Network in Germany
The ALS Pharmacy Program is being further expanded with the addition of two new specialized pharmacies in Hanover and Quickborn. This development offers patients in these regions of Germany the opportunity to benefit from specialized care close to home. As a next step, the network of “ALS Pharmacies” is currently being expanded in southern Germany,…
Patient Survey on DMC in People with ALS
The DMC Patient Survey is a survey of patients with amyotrophic lateral sclerosis (ALS) that gathers important insights into their satisfaction with the DMC medication used to treat speech and swallowing difficulties. DMC Care for ALS Dextromethorphan/quinidine (DMC) is a medication used to treat speech and swallowing difficulties in patients with amyotrophic lateral sclerosis, with…
Patient Survey on PEG in People with ALS
The patient survey is a nationwide, systematic survey of 200 patients with amyotrophic lateral sclerosis (ALS), designed to gather important insights into patient satisfaction with percutaneous endoscopic gastrostomy (PEG) and medication administration via a PEG tube.Medication Administration via PEGPharmacotherapy for ALS is particularly complex when the disease is accompanied by progressive and severe swallowing difficulties…
Relaunch of the ALS App: Better Features and Faster Technology
In recent years, the ALS app has become a trusted companion for people with ALS. About 1,000 members of our network use it to track the progression of their disease, assess their prognosis, and participate in care management. With this relaunch, we’re offering faster performance and have improved several features. The latest update to the…
The individual progression of ALS in the ALS app: the new “My progression form” function
The course of ALS (amyotrophic lateral sclerosis) can be very different and individual. The way in which the symptoms develop is described by the specific progression that is present in each affected person. Two factors are particularly important for an individual assessment of the course of the disease: To be able to better assess the course…
Request an e-prescription, redeem it at your ALS pharmacy via the ALS app, and continue to support ALS research
The e-prescription is currently being rolled out nationwide. It will replace the “pink paper prescription.” Important: Even with the e-prescription, you can continue to receive your medications from your ALS pharmacy and participate in ALS research. There are two steps to follow. Step 1: Request a printed copy of the e-prescription You will continue to…
Update of the SMA app: new functions and improved user-friendliness
We have added some new functions to the SMA app and improved its user-friendliness. The latest update of the SMA app (version 2.0.3) is available to download free of charge from the Apple App Store and Google Play. We would like to briefly introduce you to the changes in the current version. Self-assessment of the…
