A platform for specialized care and research.

Support & Research for people with Amyotrophic lateral sclerosis (ALS)

A platform for specialized care and research.

Support &

Research
for people with Amyotrophic lateral sclerosis (ALS)

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Total number of participants with ALS since 2011

10422

Number of participants with ALS by year (thousands, 2018 – 2025)

20 ALS centers in the care network

How we support you

With these care and research programs, we support you during the course of your illness.

Support

The ALS pharmacy program

Support

The DMQ program

Support

The Riluzole program

Support

The Tofersen program

Research

The ALS genetics program

Research

ALS care algorithm

Research

NfL as a criterion for supply

Support

The ALS pharmacy program

Support

The DMQ program

Support

The Riluzole program

Research

The ALS genetics program

Research

ALS care algorithm

Research

NfL as a criterion for supply

Support

The Tofersen program

Research

The ALS genetics program

Research

ALS care algorithm

Research

NfL as a criterion for supply

Support

The Tofersen program

Didn’t find what you were looking for?
Contact us.
Find answers in the “Service & Solutions” section.

The ALS app

The leading mobile app for ALS offers support for care and research via smartphone and tablet.

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The ALS app

The leading mobile app for ALS. Support for care and research via smartphone and tablet.

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read more

We are researching this

We research treatment reality and care outcomes through systematic data analysis.

As a participant, you will benefit from research findings on innovative therapies and care for people with ALS.

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learn more

Questions? Please contact us.

Can’t find what you’re looking for? We will be happy to help you!

Senthil Subramanian

Dr. Senthil Kumar Subramania

Clinical Reaseach Associate

Peggy Schumann

Medical research

Diane Wontke

Diane Wontke

Case management

Barbara Hildebrandt

Case and network management

Susanne Spittel

Dr. Dr. Susanne Spittel

Medical research

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