What does “maximal therapy” mean in the context of ALS?

“Maximal therapy” refers to the use of all treatment methods available according to the current state of medical science. This also includes the acceptance and use of medical technology—when necessary. The concept of maximal therapy also involves the use of invasive treatment methods, provided they are necessary for symptom control and prolonging life.

In cases of ALS, the insertion of a PEG tube (“tube feeding”) or a tracheostomy combined with invasive ventilation therapy (“mechanical ventilation”) may be considered. Maximum care includes (in addition to immediate life-sustaining measures) the creation of an optimal environment with access to assistive devices and medical supplies to enable social participation despite motor limitations and to achieve the highest possible quality of life.