Category: Forschung
All Clear: The APST Portal and the ALS and SMA apps are available again
Dear participants in the APST network, We are pleased to announce that the APST Portal, as well as the ALS app and SMA app, are once again available. After Charité – Universitätsmedizin Berlin took affected IT systems offline as a precautionary measure on October 21, 2026, due to a serious security vulnerability in PHP, the…
Temporary Unavailability of the APST Portal and the ALS and SMA Apps
Dear participants in the APST Network, We would like to inform you of a current technical issue affecting the APST Portal as well as the ALS app and SMA app. Due to a serious security vulnerability in the PHP programming language, Charité – Universitätsmedizin Berlin took its websites and affected IT systems offline this morning…
New: Simplified patient registration for the ALS app, now available internationally as well
We have revamped the registration process for patients on the APST website. The goal is to simplify registration, particularly for patients outside Germany, and to improve international access to the ALS app. The new registration process will go live on Tuesday, October 13, 2026. What’s New? Selecting a Country of Residence At the beginning of…
New in the ALS app: personalized care recommendations
In amyotrophic lateral sclerosis (ALS), symptoms and support needs can change over time. That is why it is important to identify necessary medications, assistive devices, or additional treatments as early as possible. The ALS app from APST supports you with personalized care recommendations. How are the dietary recommendations developed? The care recommendations are based on…
APST Research at the 2026 ENCALS Meeting – Your Data Makes an Important Contribution
The annual meeting of the European Network to Cure ALS (ENCALS) took place in Madrid from June 24 to 26, 2026. The conference is one of the most important European forums for scientific exchange on amyotrophic lateral sclerosis (ALS) and brings together leading experts from research and clinical care each year. At the ENCALS Meeting…
ALS App Europe Initiative: Connecting Digital Care and Research Across Europe
On June 23, 2026, the “ALS App Europe Initiative Meeting” will take place in Madrid as part of this year’s European ALS Conference (ENCALS ). This satellite meeting will bring together experts from clinical care, research, and digital medicine to discuss new opportunities for a Europe-wide networked ALS care system. At the heart of the…
The ALS pen – digital precision for ALS research
With the ALS pen, we are presenting a new project for the structured and quantifiable recording of hand motor skills in the course of amyotrophic lateral sclerosis (ALS) for the first time. Our aim is to record motor changes in the hand of people with ALS in a more differentiated and standardized way. To this…
The ALS app at the international ALS symposium in San Diego
On December 4, 2025, the ALS app will be presented at the“ALS App Europe Initiative Meeting” at the International Symposium on ALS/MND in San Diego (USA). The meeting brings together European and American ALS centers, researchers and patient initiatives. You can find out more about the program here: https://symposium.mndassociation.org/programme/satellite-meetings/ The “ALS App Europe Initiative” meeting…
The new ALS-OPM classification is now in the ALS app.
We are pleased to introduce an important new feature in the ALS app today: The new OPM classification is now live! The OPM classification has been available in the current app version 5.10.4 for iOS (Apple) and Android (Google) since yesterday. What does the OPM classification mean? The phenotype of ALS – i.e. the individual…
Patient survey on THC:CBD in people with ALS
The THC:CBD patient survey is a systematic survey of 130 patients with amyotrophic lateral sclerosis (ALS), in which important findings on experience and satisfaction with treatment with cannabis-containing medicines containing tetrahydrocannabinol (THC) and cannabidiol (CBD) are obtained. Cannabis-containing treatment for ALS Medicines containing cannabis are used for severe illnesses when conventional medicines are not sufficiently…
