Jena University Hospital is currently conducting a study on the topic of “physical exertion and ALS.”
The aim of the study is to better understand possible links between physical activity over the course of a lifetime and the development of ALS.
Ambulanzpartner supports this important research work and informs patients within the Ambulanzpartner network about the opportunity to participate.
Why is the study important?
Clinical observations and scientific studies to date suggest that people with ALS were often very physically active. However, it has not yet been sufficiently clarified whether—and to what extent—intense physical exertion influences the risk of developing ALS.
To better investigate this question, the support of people with ALS and their families is particularly important.
We therefore greatly appreciate your support.
How can you participate?
Two questionnaire formats are available for the study. Both provide important information and complement each other. We would therefore appreciate it if you could participate in both surveys.
- Short questionnaire in the ALS app or the Ambulanzpartner account
The short questionnaire is aimed exclusively at people with ALS and comprises 10 questions.
You can find the questionnaire:
- In the ALS app, go to “More” → “Questionnaires” → “Physical Activity and ALS”
- In the Ambulanzpartner account under “Assessments” → “Physical Strain and ALS”
As part of the study, please also complete a current ALSFRS questionnaire if possible.
- Detailed questionnaire via the study link:
The detailed questionnaire is aimed at both people with ALS and people without ALS as a comparison group.
At the beginning of the survey, please indicate whether you are participating as a person with ALS or without ALS.
You are also welcome to draw the attention of family members to the study and invite them to participate.
The questionnaire covers four thematic areas: lifestyle and living conditions.
- Physical exertion at work; physical activity over the course of a lifetime
- Information regarding ALS (for people with ALS only). Filling this out takes about 20–30 minutes.
You can access the detailed questionnaire here.
Thank you very much for your support of this important research work.
Kind regards, your Ambulanzpartner team
The contact persons from the University Hospital Jena study team are happy to assist you with any questions or feedback regarding the study.
Questions or need technical support?
If you have any questions about the e-prescription feature or need help setting it up, the Ambulanzpartner team will be happy to assist you. We’re also here to help if you encounter any technical issues with the ALS app.
Thank you very much for your support of specialized ALS care and ALS research!
Your APST team
Annekathrin Rödiger, M.D.
Specialist in Neurology
Director of the Neuromuscular Center
Jena University Hospital
Phone: 03641 – 9323482
Email: annekathrin.roediger@med.uni@jena.de
Lola Marsen
Study Coordinator
Neuromuscular Center
Jena University Hospital
Phone: 03641 – 9323482
Email: lola.marsen@med.uni-jena.de
The Ambulanzpartner team is happy to assist you with any questions or feedback regarding the ALS app or your Ambulanzpartner account.
Your contacts at Ambulanzpartner:
Marie-Thérèse Henke, M.Sc.
Medical Research
Phone: 030 – 810 314 10
Email: forschung@ambulanzpartner.de
Dr. Dr. Susanne Spittel
Head of Medical Research
Phone: 030 – 810 314 10
Email: forschung@ambulanzpartner.de
