Can I continue to work even though I have ALS?

ALS can limit, hinder, or completely prevent a person from working. The impact of ALS on a person’s career depends largely on the nature of their job as well as on various medical and social factors.

“Job roles that involve speaking,” activities requiring fine motor skills, and jobs primarily involving outdoor work may be limited—depending on individual symptoms. On the other hand, numerous “office-based” jobs are feasible.

In certain circumstances, it is also possible to change the job duties within the same occupation (e.g., by switching from “field work to office work”).

Given the multitude of factors involved, there is no “one-size-fits-all” answer regarding the possibility of continuing to work. The specific impact on motor function, the progression of the disease, the physical and psychological demands of the job, the importance of the work to personal well-being, financial circumstances, and the specific support provided by the employer are all of crucial importance.

The decision to continue, adjust, or end one’s employment requires careful consideration of the factors mentioned. This involves coordinating with the employer, one’s family, and the pension insurance provider.

If you generally wish to continue working, it is recommended that you contact the Integration Office, which can provide support regarding accommodations for disabilities in the workplace and transportation to work.

In certain situations, the Integration Office may provide funding for assistive devices (such as a separate communication system).